A child’s disability affects all members of a family, therefore the Family Program at Ågrenska is directed towards the entire family. The Family Program offers a unique opportunity for these families to meet and exchange experiences concerning the same rare disease.The program is specially designed for each separate disorder and the families join us Monday through Friday. During the stay, the parents are offered a program containing the most recent medical and psychosocial information, information on the consequences of the disorder and on the support offered by society. Professionals from the child’s home environment are invited to attend the parental program during two days. All through these two days they are also offered time for discussions. To set the program Ågrenska cooperates with national and international professionals, specialized in different fields.
The siblings and the children with the disease are offered a program that suits their needs. A preschool and school schedule is combined with medical information on the disease, discussions on their own experiences and leisure activities.The Family Program at Ågrenska works as an important complement to the habilitation at home.International conferences on rare diseases (e.g. cystenosis, neurofibromatosis, and AMC) have been offered in combination with the Family Program.
For further information, please contact, Jenny Ranfors | e-mail: firstname.lastname@example.orgAnn-Catrin Röjvik | e-mail: email@example.com Maria Svensson or Ingrid Fabo | e-mail: firstname.lastname@example.org
Ågrenska is, in cooperation with Riksförbundet Sällsynta diagnoser, a national competence centre on rare diseases.
HM Drottning Silvia är Ågrenskas beskyddare
ÅGRENSKA - Box 2058, 436 02 Hovås, Sweden - Phone: +46317509100, Fax: +4631911979, E-mail: email@example.com