National Competence Centre for Rare Diseases

Since 1989 Ågrenska has successfully developed and provided programs for children and teenagers with rare diseases, their families and professionals concerned. 
The Family Program at Ågrenska works as an important complement to the habilitation at home.

Because of the rareness of the diseases local habilitation and social services units, schools, preschools, the social insurance system etc often lack knowledge on the disorders and their consequences.

In 2005 we also launched a program for adults with rare disorders.

In cooperation with The National Organisation for Rare Diseases we started a National Competence Centre for Rare diseases directed to children, teenagers and adults as well as their families and professionals concerned.
The main objective of the centre is to gather, develop and spread knowledge on rare diseases and their consequences.
We arrange annually 20 stays for families and six stays for adults and also spread knowledge through an internet guideline for rare diseases