The Adult Program
The adult program offers a unique possibility for adults with rare diseases to get the most recent knowledge, to meet others in a similar situation and exchange experiences.
During a three days course participants attend a program on different aspects concerning their disorder. Lectures and discussions focus on the participants´ own topics and questions. We provide the most recent knowledge on medical, psychosocial and educational aspects as well as on legislation and societal support. Participants are also offered time to discuss their situation and their needs with professionals and with each other.
A focus group interview about every day needs and participation in society is also carried out.
Participants tell that they feel empowered and get more active coping strategies.
To set the program Ågrenska cooperates with national and international professionals, specialized in different fields.